Newbie from California

Welcome to all our family and friends. Patients, families, caregivers, therapists, nurses, doctors, anyone with a concern for and interest in lymphedema is most welcome!!!

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Newbie from California

Postby truckdriverwife » Wed Jun 06, 2007 11:45 pm

hello everyone finding this site has given me relief i havent felt in 3yrs ya know when your battling this desease you sometimes feel aone out there and for me i am here in sacramento lymphedema is really not known much did find a someone or my medical case worker did who treats the desease i see him for the 1st time the 12th

i found your site while doing a web searches on lymphedema and all i could find were studies./research being done in great britian,australia and canada but finding this site has helped cuz now i have others who'll understand what im going thru,already this year i spent 2mons in the hospital cuz it went septic cuz i couldnt get drs to understand i was fat from eating cuz its only my legs...ok ive rambled on enough HAVE GREAT DAY EVERYONE 8)
truckdriverwife
 
Posts: 4
Joined: Tue Jun 05, 2007 11:03 pm
Location: california

Postby Lefty » Thu Jun 07, 2007 12:21 am

Hello to person from Sacramento. I am close to the Sacramento region--good to know someone is close by that is also dealing with this situation. I was diagnosed about 4 months ago after suffering off and on for the last 20 years; my left side of everything is bigger than the right side. It's hard to work full time and sustain family and personal relationships while coping with constant fatigue, craving for sugar and a host of other emotions. Anyway, keep in touch and welcome to the forum.
Lefty
 
Posts: 8
Joined: Sun Apr 22, 2007 12:00 pm
Location: California

Postby marigold » Thu Jun 07, 2007 2:36 pm

Well, what do you know--*I* am also in the Sacramento area! :D Ms. Truckdriverwife...do you have a name (or alias) other than wife? Well, I hope you will post some more details. On this site we share everything, as you can see, for that is how we learn and help each other. Lefty evidently has primary lymphedema, while mine is secondary (due to surgery many years ago which removed or damaged lymph nodes in the groin).

My LE did not get really annoying until about 6 years ago, and progressed somewhat...I started getting treatment 2-1/2 yrs ago (after I obtained a job with medical insurance!). Fortunately, in the Sacramento area there are at least a couple of lymphedema treatment clinics. However, my regular doctors know very little--mainly what *I* tell them! :wink:

Sutter Hospital in Sacramento does have classes and a support group, though I have not attended these. The support group meets in the daytime, when I am working, although I guess I could start attending.
From their website:

This class is offered to cancer patients and families and is taught by a certified lymph therapist at Sutter Cancer Center, Sacramento.

Third Tuesday from 5:00 PM - 7:00 PM of every month
Location: Sacramento


Lymphedema Support Group
This ongoing support group provides education, information and mutual support for those who have lymphedema and is open to family and friends.

Fourth Wednesday from 1:00 PM - 4:00 PM of every month
Location: Sacramento





Marigold
marigold
 
Posts: 26
Joined: Fri Jun 16, 2006 7:55 pm
Location: California, USA

Postby truckdriverwife » Thu Jun 07, 2007 9:10 pm

Hello lefty and marigold thank you for replying

marigold my name is lori and s/o is the truck driver theyre not sure how i got this deseae theyre thinking one of 3 things or a combo of all i had a c-section in 1990(our child didnt live),my gestational diabetes turned into adult onset type 2 diabetes or primary le since my docs no next to nothing about this desease i was lucky on how i got diagnosed one of my medical case workers came to visit and said i didnt look right from the waist down and since she suffers from arm lemphedema from surgery she knew the symptoms and had me checked..marigold im a agorphobic i need xanax just to get out the door 3-4yrs ago i wasnt like this and i have days where the desease afffect my ankles and it hurts to walk but the funny thing is the very next day its like the day before never happened when i see a doc im transported my gurny since the lymphedema almost killed me back in feb i was in the hospital from feb 2nd to mar.30th and agin for 10 days 3wks ago cuz of the diabetes i heal slow which they tell me can cause cellulitis to get reinfected over and oveer and since im allergic to penecillin they use a combo of antibiotics just found im allergic to oral levaquin but not IV levaquin they think its cuz of what they use to coat the pills and the filer to make the pills there are days i can handle the swelling but the celulitis is F!#$%&# PISSING ME OFF I'M TIRED OF BEING SOGGY!!!!! and sitting on chuks 24/7 .....i weigh 450lbs they say at least over 200lbs of it is fluid i have days when i just wanna punch someone and usually take it out on s/o and my oldest son but never on my grandbaby..ok lost my train of thought is there anything you want to know just ask oh and 50yrs old very sarcastic,and believe humor is a way of life if ya cant fint at least one thing a day to truly give a righteous out loud belly laugh take you meds just kiding
truckdriverwife
 
Posts: 4
Joined: Tue Jun 05, 2007 11:03 pm
Location: california

Postby Lefty » Thu Jun 07, 2007 11:59 pm

Hi again truckdriver's wife (Lori) and Marigold. Marigold, thank you for the reassurance that we can learn from each other on this forum. I have actually learned quite a bit since visiting this forum and if I'm in doubt, I get on the computer to do more researching. It's a shame but I have not asked my primary doctor any questions because, although very well informed in other areas, my good doctor gives me the impression that he doesn't have a clue. After all, I complained repeatedly over the years and he never once spoke of LE. Aren't doctors required to take continuing education courses to keep abreast of the latest medical findings :?: I know attorneys and paralegals are required to enrolll CLE (continuing legal education) once a year. It was my doctor, however, that referred me to a podiatrist since my oversized left foot "needed arch support for bone alignment." The podiatrist felt my inner pain and embarassment and told me that I can order a $300 arch support if I want but something else is going on. He ordered x-rays then referred me to a specialist in LE. The rest is history. Here I am. Lori, hang in there--the support of family and friends can work wonders. Marigold, keep the information flowing, you have good information. I want to stay up until midnight reading all the posts but I get up at 2:30 a.m. and must be in bed by 9 p.m. at the latest, oh..I'm late for bed :!:
Lefty
 
Posts: 8
Joined: Sun Apr 22, 2007 12:00 pm
Location: California


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