I was diagnosed about 8 years lymphedema and lipodema bilateral legs. i have trided twice with bandaging and wrapping of the legs twice and could not continue due to rash and skin irritation. All the materials used were latex free. i am allergic to latex. My legs started swelling again so went back to a lymphedema therapist again and she reviewed my old records and could not help because she even agreed the risk is too much to try wrapping again due to history of skin irritation and rash. She referred me back to see a Lymphedema Specialist agin to see what other alternatives could possibly work. My doctor is already working on the referral to one and will know withion about 2 weeks from insurance. There should be nothing to block because the doctor is contracted provider with my insurance. Also too can get a definitive diagnosis if now my right arm is also lymphedema as well which started swelling a year ago with a weird rash. Had tests and saw rheumatologist not vasculitis but she thought possible lymphedema even though not following the normal pattern of lymphedema. I will also get more information to see if possible the abdominable iissues I have had for years is also connected possible lymphedema of the intestines, even though the only place i know of right now to be able to do specialized tests is Mayo Clinic in Minnisota, not help because I am in California.
My question is has anyone else had trouble with the bandaging and wrapping and having skin issues from it? Both lymphedema therapists I have seen have never seen that type of reaction before and they are not sure either what would help after the swelling is reduced because compression stockings make my chronic nausea and abdominable pain worse and I get sick alot more. If you haver had issues what else was tried that I can look into that and see if possible help for me? Just looking for more information.