Page 1 of 1

What to expect/tell/ask your doctor?!?!

PostPosted: Thu Nov 02, 2006 11:20 pm
by Wendie
Hello again!

I am seeing a vascular specialist tomorrow and really have been praying for a definitive diagnosis (one way or the other) on lymphedema in my neck and possible spreading. Does anyone have any suggestions on how to present your case with intelligence and facts? I don't want to seem like I'm leading him to a diagnosis. I don't want to seem hystrionic. I just want to be able to convey my symptoms accurately and objectively. The problem is my symptoms aren't completely subjective. It's obvious to look at my neck that there is a definite difference from left to right. But to actually quanitfy the difference if difficult becuase it is hard to find a place to measure your neck that doesn't include the other side of your neck as well. I have a low-grade fever, some darkening of the tissue (actually on both sides of my thyroid gland) and now my thyroid itself is swelling. Honestly I just want a clinical diagnosis so I can then work with the appropriate professionals to prevent it from getting worse. My intuition tells me it is lymphedema. How do you explain that to a doctor?

Thanks in advance..

PostPosted: Fri Nov 03, 2006 5:26 am
by silkie
Hi Wendie

A lot of members print off info from this site when going to clinics or

I have a doctor that actually saiys you know more than me what do you


Most of the time going to a doctor Clear precise details

and i always tell them my worse days because those are the days i cannot manage and need help with

Vascualr doctors are usually aware of lymph (usually)

Good luck let us know how you get on



Frustration Increases

PostPosted: Fri Nov 03, 2006 6:20 pm
by Wendie

It did NOT go well. Doc says that since he can't feel any lymph nodes in my neck, there isn't a problem. Even though he said he can physically SEE the area that is swollen, he is basically dismissing it. He is 72 years old so maybe he just doesn't have the time and patience for this anymore. He is calling for a CT scan in January. I am so frustrated I could cry, and probably will. Hope you are well.


PostPosted: Fri Nov 03, 2006 6:27 pm
by joanne johnson
Hi Wendie,
Just the fact that your doctor is 72 years old is a big clue as to why he is clueless! He may have alot of medical experience but not with lymphedema. A younger doctor may be a little more up to speed.

I have lymph in both legs and it was a vascular specialist who came up with the correct diagnosis. As Silkie suggests, try a good vascular doctor. Good luck to you!

PostPosted: Fri Nov 03, 2006 7:05 pm
by silkie
Hi Wendie

First hurdle there will be a few more no doubt to get over but never give up Your worth the effort .

Dont people retire over there?

If there are no lymph nodes then surely your system canno be working effeciently?

No crying you get wrinkles like me

I would try to see a specialist Wendie. not just your general doctor

at least you will have more confidence in someone that knows lymph

in the mean time there are excercises for the neck in the information

im sure they wont harm you and only go to a comfortable lever no pain or strain ok

Have a go might help a little of the pressure