Newbie from Australia

Welcome to all our family and friends. Patients, families, caregivers, therapists, nurses, doctors, anyone with a concern for and interest in lymphedema is most welcome!!!

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Newbie from Australia

Postby leelee » Fri Dec 01, 2006 6:27 pm

I will start by saying that I was so happy to find this website, as I feel less alone right now. My name is Lee and was diagnoded with Lymphedema almost a year ago after knowing something was wrong for a long time. Crunch time came after I had cellulitis 6 times over 2 years and started seeing specialists. I was pretty clueless and my body has ended up developing a toxicity to penecillin, due to the massive doses I was taking over that time. My final diagnosis ended up as Milroy's disease. To be honest I'm still pretty clueless, I am using compression stockings and lymphatic drainage and have good days and bad days. I try to stay positive most of the time, but the bad days hit me like a brick....I'm going to end there before I ramble away the rest of the day.

Lee
leelee
 
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Joined: Fri Nov 24, 2006 10:09 pm
Location: Sydney, Australia

Postby patoco » Fri Dec 01, 2006 10:37 pm

Hey Lee :D

Super welcome to our family :!: :wink: It's ok to ramble...sometimes, it just does to heart good to do so :mrgreen:

I'm glad you've finally gotten a diagnosis and have been having treatment. The cellulitis sounds terrible...so many attacks in such a short time. My infections doctor has me on daily antibiotics, which has helped me.

I've have Milroy's as do several other family members.

Do take time to go through the info and if you have any questions, please don't hesitate to ask...we are all here for you :!: :!:

Pat O
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Postby silkie » Sat Dec 02, 2006 1:58 am

Hey Lee

Big welcome to the Family

Wow what a time you have had.

I must say Where you live is one of the better places to be for Lymph

there is help in your country but it does depend on where you live i should imagine.


the information and support here from Pat and our members is brilliant

there is a lot to read, check out MLD skincare especially

both so important with swellings and infections

anything your unsure of or concered about even the littlest thing just jump on here and ask

we are one big family

hugggggggggggggg

Silksxxxxxxxxxxxxxxx
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Postby leelee » Mon Dec 04, 2006 5:42 pm

Thanks Silkie and Pat for the welcome. It feels good as I have been struggling over the last few weeks. I'm slowly reading through some of the information on the site. I have really struggled with getting good information that I can understand. I was also adopted so there is no one in my family that really gets what's happening. I now feel like I can talk it over with people who understand and that is a huge relief.....

Lee
leelee
 
Posts: 3
Joined: Fri Nov 24, 2006 10:09 pm
Location: Sydney, Australia

Postby silkie » Mon Dec 04, 2006 11:58 pm

Hi Lee

I am so glad you feel at home here

It is something that is hard to understand even for us.

We all have our own little ways of dealing with lymph in our everyday lives

Coyote (julie) she has an art blog . Gottahavesun (lisa) she is learning all she can about lymph and is helping others.

Pat well he never stops learning passing his knowledge on and fighting for
the rights of lymphers in the USA particulally but also he loves to get lymph out there in the net in all the countries from russia china (yes he has information on there browsers to .

So amny members are here and reply to postings because the remember what alone is like and no one to alk to. They dont want anyone feeling that way alone and lost.

I know its hard we dont understand so much our families even less
thios is not happening to them its so hard for us to understand and were living with iteach day. How much more difficult when you dont kinow the tiredness or the feeling down .

Please invite your family to come and see us here if they wish
Or many of the members download information even the letters i have used to show my nearest and dearest that its not only me that has these problems

If they would like to talk to someone lee i dont mind jumping on msn or yahoo and chat.

Huggggggggggggggg
Silksxxxxxxxxxxxxx
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Location: England

hiiii

Postby blush » Sat Dec 09, 2006 10:26 pm

hi lee,
i noticed that you are in sydney, but it might do you some good to try and contact the mercy lymphoedema clinic in melbourne (east melb and heidelberg) they are very good and only do treatments which are completely proven, they lay be able to give you some info for somewhere in your area that they know;;
any help;; just ask

blush
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Location: AUS

Postby leelee » Sat Jan 13, 2007 10:29 pm

Hi Blush,

Thanks for the tip...I will give them a call tomorrow. It has been so hard to get good information (except on this site), treatment and support as many people have no clue.... best example I was asked at work the other day if I was putting on weight....boy, did I feel crap after that..... Anyway, im feeling better today and I suppose that's what matters.

Lee
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Posts: 3
Joined: Fri Nov 24, 2006 10:09 pm
Location: Sydney, Australia


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