I'm new but my Lymphedema isn't

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I'm new but my Lymphedema isn't

Postby Nancy Bush » Sun Mar 04, 2007 7:42 pm

Hi....I'm new to the forum, but have been visiting the site, and reading the stories of others for over a month. I have found it all very illuminating, and comforting to know there are others out there who have gone through what I have, and can understand the difficulty of it all.

I'm 52 years old, and was diaganosed with Primary Lymphedema in my left leg almost 2 years ago. In the last 8 months I have developed it my right leg as well, although the left leg is still the worse.

I was very frustrated to find out there wasn't a "cure" or a surgical procedure to fix it all up. I went through quite a long period of denial, and did nothing to treat my condition. I would wrap my leg every once in awhile, but was never given instruction on how to do so properly, and was using an ace bandage, which I discovered after reading the stories in these forums, is a "no no."

I lost my boyfriend of 19 years almost 3 years ago, so I am alone except for my "girls", two cats. On top of that, I was laid off from my job last October, and have no medical insurance at this time. I have signed up for SS Disability, but have yet to hear if I'm approved. I'm keeping my fingers crossed for that, and was encouraged to read stories from others whose applications were accepted.

My condition has worsened since losing my job, probably due to my decrease in activity since then. The swelling has increased, and the skin has developed an "alligator like" feel. I have leakage of fluid from my left leg in two places, and have gone through gauze like crazy to try and control the flow.

I visited a website for proper bandages and supplies from a link provided by one of the people in the forum, and they were delivered yesterday. Now I just have to tackle wrapping my legs. This proves to be difficult, as I am very overweight, and my tummy gets in the way as I try to lean forward to do the wrapping.

Well, that's my sad tale. Sorry I wrote so much, but it's my first post, and I wanted to get all the "gory" details out of the way. I'm glad to be a part of this Lymphedema family. It really helps to know there are others out there, and I don't have to feel so alone.

Floral Kitty
Nancy Bush
 
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Postby silkie » Mon Mar 05, 2007 3:42 am

Hi Nancy

Big welcome I dound the same feeling of Meeting people that understand and care when i first came to the forum and the info in my orinion after some years of searching the net is the BEST there is
not only is there the thoroughly researed info pat gives us
but the vast experiences of the members of this fantastic family

So many times the help and advice i have receieved has got me thru so many hard times

I had the same problem with wrapping reaching my feet and bottom of the legs

Try sitting with the leg your bandaging bent in half on the chouch and the onter leg firmly on the floor

hanf your anckle and foot ober the edge of the cushions wrap your foot and ankle and maybe a little of your leg before putting the foot down on the floor and continuing up the leg hope this helps

good luck
huggggggggg

Silksxx
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Postby patoco » Thu Mar 08, 2007 1:01 am

Hi Nancy :)

Been a slaggard here in posting, but I did want to give you a super welcome and glad you were able to join. :D

Be sure to check through the Leg Lymphedema sections as there are articles written by therapists on how to correctly do leg bandaging.

Also, on one of my lymphedema blogs Lymphedemaville
we have a series of illustrated pages on bandaging.

Leg Wrap Lymphedema Illustrated 1

http://journals.aol.com/patoco2/Lymphed ... ted-1/1728

Leg Wrap Lymphedema Illustrated 2

http://journals.aol.com/patoco2/Lymphed ... ted-2/1729

Leg Wrap Lymphedema Illustrated 3
http://journals.aol.com/patoco2/Lymphed ... ted-3/1730

There is also a written page on how to wrap around the knee.

Knee Wrap Lymphedema

http://journals.aol.com/patoco2/Lymphed ... edema/1731

Here's one technique I use for those leaky wounds we get:

"I learned a wonderful technique from a wound clinic several years ago. This is excellent for superficial wounds.

I use a very simply, but effective ointment. Desitin with zinc,
thats right baby diaper ointment.

Cover the wound with ointment and place several pieces of square gauze over it. Wrap the affected part of the limb with rolled gauze and then wrap around that with an elastic bandage. Wrap firm but not over tight, using a criss cross method (figure eight).

NOTE: This is for superficial wounds only. If the wound does not clear up within a few days, consult your doctor. You must also see your doctor immediately if it is a large wound or injury or if there begins to be inflammation or infection.

Sometimes, you may even need to go to a Wound Clinic. I have found them to be wonderful and very helpful."

from:

Lymphedema Wound Care

http://www.lymphedemapeople.com/thesite ... evised.htm

Recently, there has been a new product developed that is a super help for thsoe os uf who find wrapping difficult.

It is called Farrow Wrap, here's a link with info:

http://farrowmedical.com/files/docs/far ... _study.pdf

Here's the main website for Farrow Medical

http://farrowmedical.com/

One other thing you might want to do is to put lotion on your legs every day. A lot of the lymph doctorswill recommend Eucerin.

What I have found is that many stores will carry their own store brand of the lotion which is a lot less expensive. Just compare the ingredients on both to make sure the store brand has the same thing.

Hope all this can help....please don't hesitate to ask any questions you may have.

Best to Ya :!: :!: :!:

Pat O
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