HOSPICE, genetics clinic, leaking legs, EMG, nerve conductions, phantom liquid feeling, chronic fatigue, chills, malaise, ankle pain, swollen feet, transient lymphedema, full body lymphedema, tissue hardness, dystonia, painful boil

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Postby angel » Sat Jun 02, 2007 7:04 am

Hello me agin. Just to say further to my last post 'been to the doc', I am still at my wits end about how to manage this swelling and to the cause of all this discomfoet-although I have a sneaking feeling and so does my mum that I too have Lupus. I just feel I can't stand anymore waiting. People keep giving me sympathy -this is lovely but nothing has changed in seven yrs which is about the amount of time I have been suffering with this. I feel my life has been snatched away-at 28 I'm an invalid living a limited life. I just feel I ma getting sicker and sicker and no -one is moving fast enough.
I am better some days than others but on ba days I question why I m like this.
I am trying not to get my hopes up too much about my genetics appointment on tuesday,but I am praying they can do something.-answers!
Going to le therapist today.
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Joined: Fri Dec 29, 2006 8:15 am
Location: Scotland

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