New User Name

HOSPICE, genetics clinic, leaking legs, EMG, nerve conductions, phantom liquid feeling, chronic fatigue, chills, malaise, ankle pain, swollen feet, transient lymphedema, full body lymphedema, tissue hardness, dystonia, painful boil

Moderators: Birdwatcher, jenjay, Cassie, patoco, Senior Moderators

New User Name

Postby PamelaS » Fri Jun 09, 2006 2:28 pm

I am very glad to see this site up and running again. Thank you Pat for getting this going again, as it is a valuable place for those of us with lymphedema.

My new user name is PamelaS. I believe before it was Celticferretmom. I am also the owner of 2 ferrets, Oscar and Gaby - the little joys of my life. :)

Hope to see you guys here soon.

Posts: 43
Joined: Fri Jun 09, 2006 8:44 am
Location: New Jersey

Postby silkie » Fri Jun 09, 2006 5:38 pm

Hiya Pamela aka celtic
Good to see an old face back . Don't know about you but
im sure i have had withdrawls missing LE ppl and all our friends here
and reading the postings
So glad we can all get together again


Silks xxxxxx
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Posts: 383
Joined: Fri Jun 09, 2006 4:43 pm
Location: England

Postby Kim » Fri Jun 09, 2006 8:00 pm

Oh how I have missed everyone! I hadn't realized what a lifeline this site is for me. One of those things taken for granted until you don't have it! Thanks Pat for getting us up and running again! This has just made my day! :D

Posts: 95
Joined: Fri Jun 09, 2006 12:57 pm
Location: Texas

Postby silkie » Fri Jun 09, 2006 8:19 pm

:D :P :D :D :D :D :D :D

Hiya Kim good to see you made it

I know what you mean was like being on cold turkey eh lol

dont you think its "POSH" the new home!

like going to tiffanys instead of walmart lol


Silkie xxxxxxx
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Posts: 383
Joined: Fri Jun 09, 2006 4:43 pm
Location: England

Postby coyote » Fri Jun 09, 2006 10:26 pm

Like the new digs, guys!

When I heard about what Go Daddy did: :shock: :shock: :shock: I haven't been keeping up very well with things because of the struggle I am having with my own medical problems, but to not have this lifeline there, even for a little, what an impact on my feelings! Experienced a wide range of emotions over this glitch.

I am just happy Pat (and Brad?) are up to the task of inputting everything all over again!
Posts: 43
Joined: Fri Jun 09, 2006 10:11 pm
Location: Wisconsin, USA

Postby silkie » Sat Jun 10, 2006 2:48 am

Hiya Coyote

Sorry you have had a rough time.

The heat is giving me a few uncomfortable moments right now

you take care of yourself hun

i know your very careful as we all know ,You can keep to your self care
maticuloously but when the dreaded infections and bad days strike

there is not a lot you can do except Pick you self up and start again

you look after yourself


Silksxxxxxxxxxxxxxxxx :wink:
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Posts: 383
Joined: Fri Jun 09, 2006 4:43 pm
Location: England


Postby gary1955 » Mon Jun 19, 2006 2:43 pm

Just stopped in to say hi. Hope everyone is doing good. Check out my new website.
Posts: 37
Joined: Mon Jun 19, 2006 2:40 pm
Location: Cuyahoga falls Ohio

Postby silkie » Mon Jun 19, 2006 5:55 pm

Hi Gary good to see you

Hows the legs?


Silks xxxx
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Posts: 383
Joined: Fri Jun 09, 2006 4:43 pm
Location: England

Postby kathy » Fri Jul 07, 2006 8:13 am

hi everyone,
i agree with you guys--i really missed reading everybody's posts and finding out new info. i didn't realize what this site meant until i couldn't get on.

i have to tell you, my family went to the beach on vacation last week and i cannot tell you how good i felt to be able to go swimming and not be self-conscious about my "big" leg. i actually felt normal. my husband is very supportive and always tells me that it doesn't matter what it looks like.

hope everyone is doing well since the last time that i was on.

Posts: 6
Joined: Thu Jul 06, 2006 3:27 pm
Location: READING, PA

Postby patoco » Fri Jul 07, 2006 12:53 pm

Hi ya Family

LOL...can't tell you how lost I felt too without everyone.

I absolutely couldn't not wait to have everything back up and running.

Sooooooo appreciate with all my heart the family that has rejoined and I look forward to our remaining family coming back as well.

Love you all :!: :!: :!: :!: :!: :!: :!:

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Site Admin
Posts: 2175
Joined: Thu Jun 08, 2006 9:07 pm

Postby joanne johnson » Fri Jul 07, 2006 4:35 pm

Hey Pat,
Always remember we really love and appreciate you too. None of this would be possible without your caring and dedication. Now we are better than ever! God Bless...
joanne johnson
Posts: 165
Joined: Sat Jun 10, 2006 12:23 am

Re: New User Name

Postby Mali66 » Sun Mar 01, 2009 11:28 am

I haven't posted much on here, due to my father having cancer, as well as, my own trials and tribulations. But I am a firm believer in everything happens for a reason. With that said I hope to have some exciting news soon, for people with lymphedema. Until I have a confirmation, I am going to hold it under my hat. But, I would be glad to hear your stories.
I have been in a nursing home for 9 years. i was 33 years old when I came in. That was a lifetime ago. I have developed CHF, sarcoidosis, diabetes, neuropathy, kidney disease, abscesses, multiple boats of pneumonia, and even lost my right pinky toe...the list is endless. Many chances have been lost, but I can only hold onto hope and faith. Praying that the second half of my life, will be lived with eyes wide open! Love & Light, Mali66
Posts: 1
Joined: Fri Aug 24, 2007 8:41 pm
Location: Andover, Ohio

Re: New User Name

Postby SueB » Sun Mar 01, 2009 10:19 pm

I am wondering how Pat OConnor is doing these days. I would like an update on him......he has helped so many of us.
Thanks, SueB
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Joined: Tue Jun 03, 2008 8:11 pm

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