Hi From a Newbie in Michigan~

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Hi From a Newbie in Michigan~

Postby XrayGirl » Wed Oct 25, 2006 8:17 pm

Hi Everyone~ This is my 1st time here, so I will fill you in on the details. I am a 43 yr old married woman with bilateral leg lymphedema. This was confirmed 2 years ago, although I have complained to my doctor about the swelling for over 12 years. I started noticing the extreme swelling during my first pregnancy. My doctor would always blow me off, stating that I come from large Polish stock, stand at work all day, and have poor circulation etc, etc. I figured if she wasn't too worried about my legs, why should I be. Loosing weight didn't seem to help much. Now that I am much more WISER and finally have some answers as to WHY my legs look like water balloons, I am taking this more seriously. I am just now finishing up my 2nd round of lymphedema massage at the Lymph Clinic at Michigan State University. I have a wonderful therapist and she has taught me so much about what could happen if I choose to "ignore" my problems any longer. I have been in denial, which has got me nowhere. Anyhow, to wind up my 1st post, I just wanted to say that I am in Stage 2, have some moderate fibrosis, but am very lucky to never have had any infections (knock on wood). I have enjoyed reading all your posts and wil lcheck back every day! Hopeto hearform you soon!
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Joined: Wed Oct 25, 2006 8:04 pm
Location: Lansing, Michigan

Hi, back to you

Postby itiswhatitis » Fri Nov 03, 2006 2:49 pm


I'm brand new to this forum, also. I'm 53, married, and have just been dealing with LE for about six months. Mine started as a result from cancer damaging the lymph nodes in my groin area, which has caused my right leg to swell to twice its size and a fair amount of edema in my left foot.

The cancer is my main problem, but the edema causes so much pain that it is my main focus right now. I'm not an expert -- far from it -- but just wanted to say "hi" back to you, since no one had answered your post, so far.

There's a ton of good information here. I think I've learned more in a few days than I have since I started having this problem.

Good luck,


Postby silkie » Fri Nov 03, 2006 4:26 pm

Hi Xray
big welcome to the family :)

You seem to be doing great with your lymph :D

As far as infections go my therapist here in the UK

was amazing . And i was soon doing self care
that was 2002 what she did tell me and I am Thankful she did

Is that sometimes no matter how well you take care of your limbs

infections can come out of the blue its nothing you have done wrong they just happen

When i got my first infection i was so glad of those words for as far as i could tell i had done everything right.

I have had 3 infections in 4 years so im extreemly lucky

the first was out of the blue the other two were breaks in the skin and blisters

If Denise hadnt told me this could happen i think it would have really depressed me and worried me as to what i was doing wrong

I just think its a good piece of information for us

Looking forward to hearing lots from you
Great to have you with us


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