Its good to find this forum, someones that could understand me
.Its all started when I was with 7 years old or less, my foot got swollen when I was travelling long distances.
Year after year, very slowly its appeared. But only in long distances and in very hot weather.
I learned to hide my feet when they're hyper swelling, to escape the questions of people of what happened.
I did several tests, cardiac (normal), circulatory (normal) and Varis (also normal). I'm overweight, but I've seen people much fatter than me with skinny ankles.
Till 37 years old I thought that I was the only person in the world that surfer with this trouble. There I found one woman, I just looked her lags and I recognized the ankles. She told me that she had a good and a bad news for me: The good one was that it was just an visual effect and the bad one was that it had no cure.
Some year after this I was travelling across the Europe by buss, and my legs were so swollen that I began to feel difficulty to feel my foot fingers. And I went all travel with they up, but without results. After this I went to a doctor that said to me to put my lags up when I was sleeps. I did it for years but with no results. When I put them down they swollen automaticly.
In other travel I discovered by myself that if I compress my feet I kept the dimensional control of it. Then I always use a shoe tight on them, during the travels.
I leave in Brazil and I speak portuguese, dont have that option in this forum
.Well when the weather is cold I, sometimes, forgot that I have this lymphedema, I feel normal, I can see my ankles bone
, but when the hot weather comes my whole body becomes swollen 
, starting of course with legs, taking my hands, like today, I could feel till my face swollen. (with just one hot day, and we are in the end of winter time, the hot time just begin) Well, I fell that its worsening. Im with 44 years old now and the only thing that can hold the leg swelling are those terrible socks ( I over hot with them) and the cold weather. I really have no idea what I could do better then this. I gave up to put my lags up, because its doesnt work with me. The swollen just leaves my legs and goes to my hands and face. I joked with my friends that I have a drain problem, that my lymph climb down and it doesn't know how to climb up.Today I really thought to take a diuretic. And I started to search in internet if it was good for lymphedema trouble (all the people who knows me suggest this) and, takes God, I found this forum that told me for don't do this.
Any idea, or we have to let it go on and become conformed with this swelling situation?
Ill translate all your forum, someday, I have a little difficulty to understand some terms but Ill get it.
Its good to know you. I hope that we can exchange ideas and experiences.
. I am very angry at my first doctor, that he didn't tell me, that it will end that way. Now I always remember to put your legs higher then my heart, to wear compression stockings. I even learn how to make a draining massage and I do it, when legs are worse. That all is not sisyphean task, it really works! Now I know how to stop the process of fibrosing lymph.
well I can hide my legs or my hands but my face dont. I hope that its stop but Im fraid. And I will have my first appointment with an lymphedema doctor in 2 weeks. Well, at least is just one side.